Latest news
Caterina Grace Foundation
A new registered charity in New York, USA. See the Fundraising page for more details.
01.02.2016 - New website
I am delighted to welcome you to the new version of the NMSG website.
David
Supporting MAP Nemaline
MAP Nemaline was set up with the help of Muscular Dystrophy UK in order to directly fund research into nemaline myopathy.
Learn more »»
08.05.2015
Zebrafish models for nemaline myopathy reveal a spectrum of nemaline bodies contributing to reduced muscle function.
Read the Open Access full paper »»
14.04.2015
New research in Spain (www.rarecommons.org)
Details are available via the Spanish Encuentro de personas con MIOPATÍA NEMALÍNICA y familiares on Facebook or, contact me (davidmcd_@hotmail.com) for the email address of a Spanish friend who can explain more
The website and the people with the knowledge you need.
Born : July 18, 1999 - Updated : 14th March, 2020
The original website for nemaline myopathy
NM Support Group is a member of Genetic Alliance UK
Plant a tree for NMSG
Purchase a tree to dedicate to anyone with NM and help us raise funds for our next convention.
Planting a tree is a great way to mark an occasion or to remember a loved one. I am offering people the opportunity to plant a tree in celebration of a
family member or friend with nemaline myopathy and at the same time raise funds for the Nemaline Myopathy Support Group.
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