The website you need, with the people you need,
with the knowledge you need.

Born: July 18, 1999
Relaunched: July 18, 2012
Updated: June 13, 2013

 
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Email Chatgroups
Active Family Discussion Group
(210+ families subscribed.)
10-25 Year Olds Group
SLONM
Espana egroup por MN
Deutsche Chat-Gruppe
Gruppo italiano di chiacchierata

Facebook
NM Global Awareness
(650+ members)
Family and friends join the official group

Twitter

To date, over 650 people have
contacted me from 50 countries.
See Around the world for a breakdown.



Introductions
 Research
Resources
 Miscellaneous

Genetic testing (June 13)
Dr. A. Beggs (June 17)
Prof. N. Laing (June 13)
Prof. K North (Jan 12)
Assoc. Prof. Ottenheijm (Jan 12)
Dr. C. Wallgren-Pettersson (Jan 12 )
Research projects (Jan. 29)
ENMC (Aug. 25)
Science papers online (Oct. 16)
CMD International Register (Feb. 27)
Gene Express (coming soon)


NM Convention 2004
NM Convention 2007
NM Convention 2009
NM Convention 2011
NM Forum 2013 (June 5)

Advice (Jan. 25)
Explaining things (webs & webinars) (Oct. 17)
Therapies & Personal Development (Oct. 17)
Medical and surgical assistance (Dec. 15)
Patient care (May 5)
Webpage for SLONM (Oct. 4)

NM Support Group (NMSG) (Mar. 20)
NM Foundation (Aug. 25)
A Foundation Building Strength (Feb. 13)

Retailers/Suppliers (May 2)
Travel/Holiday/Insurance advice (March 8 )
Emergency lists for travel
Drugs and supplements (Jan. 13)

This page was last updated: June 13, 2013
© David McDougall. 1999-2013
Contact: davidmcd_@hotmail.com. All received emails will be answered. (Please quote Nemaline Myopathy in the subject line.)
Disclaimer
This web site is here as a starting point for anyone seeking more information about nemaline myopathy and contacting other families whose lives are effected by it. The details provided and linked to this site are for information purposes only. All information is provided in good faith and with the understanding that I do not offer medical or professional services, of any kind. It is recommended that you should not use the information without consulting your doctor. No warranties of any kind, are expressed or implied. I do not accept liability for any loss or damage resulting from the use or misuse of any info contained on this site, nor for any errors or omissions. Basically, use this site at your own risk! Surfing this website can seriously increase your knowledge of NM. ;-)

This is NOT a medical site. It is intended for informational purposes only. Please contact your medical professional if you have questions about your specific condition.

Links on this site have been included as areas of possible interest. I cannot vouch for the accuracy or suitability of information you may find on them, or on sites linked to them. Information may concern prognoses and must be treated with sensitivity. Be VERY wary of any site that offers treatment or cures and always ask for independent, professional medical advice before you contact a site of this type. If you are not medically qualified and find an item that worries you please discuss it with your doctor.